FNIH’s Dr. Travaglia and ALS Patient Advocate Dr. Sethi Discuss New ALS Program

In this episode, Ayesha spoke with Alessio Travaglia, PhD, Director Neuroscience at the Foundation for the National Institutes of Health (FNIH) who also manages FNIH’s new Accelerating Medicines Partnership in Amyotrophic Lateral Sclerosis (AMP ALS) program, and Nadia Sethi, DDS, an ALS patient advocate who formerly served as Director of Community Outreach and Engagement at the ALS Therapy Development Institute.

Dr. Travaglia has 15 years of experience in basic and translational neuroscience in academia, non-profit, management consulting and venture philanthropy. Dr. Sethi is a patient advocate with strong leadership skills, experienced in patient outreach and representing advocacy organizations. She was a caregiver to her late husband who had ALS.

Last month, the FNIH launched a new AMP ALS research program designed to accelerate the discovery and development of treatment and diagnostics for ALS. The goals of the initiative include the faster identification of biomarkers and clinical outcome assessments that will may aid in earlier diagnosis and help accelerate drug development.

ALS is a neurologic disease with severely limited treatment options, none of which halt or reverse the progression of the fatal condition.

To learn more about the FNIH’s new AMP ALS program, including the continuing importance of patient advocacy and inclusion of the patient and caregiver voice in ALS research, tune into the discussion with Dr. Travaglia and Dr. Sethi.

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